Stephen’s remembrance of Stephen Hawking featured in Newsweek 3/15/18: STEPHEN HAWKING’S GREATEST LESSON—A DEGENERATIVE DISEASE WON’T STOP US ACHIEVING GREATNESS. I am one of at least 20,000 Americans currently living with amyotrophic lateral sclerosis (ALS), just a part of the broader worldwide community mourning the passing of Stephen Hawking. His life was exceptional in many ways, just one of which was how full a life he lived for more than…
Boston Herald 9/5/17 Shining a light on ALS. Stephen Winthrop, a Wayland resident who was diagnosed with ALS in 2013, is chairman of the national ALS Association’s board of trustees. He spoke to the Herald’s Jack Encarnacao about the transformative effect Pete Frates and the Ice Bucket Challenge has had on public understanding of the disease.
Loud Owl 8/30/2017: “What Keeps Me Fighting: Living with ALS”. Stephen Winthrop, a trustee on the National Board for the ALS Association, knows the adversity that come with this disease intimately. When muscle twitches began in his left arm at the beginning of the decade, Winthrop said that, “like most guys, I just ignored the twitching for a while. It wasn’t until November 2013 that I was actually diagnosed with…
WGBH Greater Boston 5/24/17: Financial Struggle of ALS. This summer marks three years since the Ice Bucket Challenge first swept social media – with the goal of raising money for A-L-S research. It was started by Beverly native and Boston College star athlete Pete Frates, who, at the age of 27, was diagnosed with ALS — a debilitating condition that right now has no cure.
ALS Association Blog: Q & A with Stephen Winthrop, Chair, ALS Association National Board of Trustees. Today, we sit down with Stephen Winthrop, our newly elected Chair of The ALS Association Board of Trustees to hear his thoughts on the fight against ALS and the role of The ALS Association in that fight. Stephen first joined the Association as a Trustee in 2015.
Lifetime TV 5/4/17: The Balancing Act ALS – Behind The Mystery- Rare Disease. This segment features Stephen explaining his diagnosis, how ALS has affected his life, and features they have implemented in their home to support his needs.
ALS Association Blog 4/21/17: Stephen Winthrop, Who Has ALS, Elected Chair of ALS Association Board of Trustees. The ALS Association today announced the election of Stephen Winthrop as Chair of The ALS Association Board of Trustees. Stephen was diagnosed with ALS in 2013 and joined the Board in 2015. He replaces Doug Butcher, who will remain a member of the Board.
ABC Affiliate in Boston Airs “Unlocking ALS” Special. Last night, WCVB, the Boston ABC affiliate, featured a half-hour show called “Unlocking ALS,” highlighting all the great work coming out of the Boston area in the fight against ALS. The importance of participating in ALS clinical trials was emphasized (in the third link below) by Stephen Winthrop, member of The Association’s National Board of Trustees, who also gave a tour of his home that is full of advanced technology focused on maintaining mobility, accessibility and safety.
Stephen Winthrop’s Acceptance Speech for ALS Heroes Award, ALS Association Leadership Conference, 3 February 2017, Irvine, CA.
Wayland Town Crier 3/7/17: Wayland resident gets award from ALS Association. Stephen Winthrop of Wayland received the national Hero Award at the ALS Association’s Annual Leadership Conference in Irvine, California, on Feb. 3. Winthrop, who has lived with ALS since November of 2013, has served for the past two years as a national trustee of the ALS Association.