Day 11: Half of all ALS patients are dead 3 years from diagnosis

Day 11 of ALS Awareness Month: The biggie. Half of all patients are dead 3 years from diagnosis. 90% are dead after 10 years. 😠 This is one of the biggest facts people need to know. There is NO TIME to waste on politics, bickering, or egos. There is only time to work toward an effective treatment/cure and live as well as one can. Make no mistake: if Stephen or…

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Day 10: 90% of ALS patients choose not to have a tracheostomy

Day 10 of ALS Awareness Month: Today’s facts come from a “guest author,” a pALS named Catherine Scott. Catherine has familial ALS and has seen too many relatives succumb to the disease. She puts into words so well the horrible dilemma pALS and their families face: when one’s diaphragm and intercostal muscles no longer work and breathing is impossible on one’s own, should one have a permanent tracheostomy (often with…

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