Day 11 of ALS Awareness Month: The biggie. Half of all patients are dead 3 years from diagnosis. 90% are dead after 10 years. 😠 This is one of the biggest facts people need to know. There is NO TIME to waste on politics, bickering, or egos. There is only time to work toward an effective treatment/cure and live as well as one can. Make no mistake: if Stephen or…
Day 10 of ALS Awareness Month: Today’s facts come from a “guest author,” a pALS named Catherine Scott. Catherine has familial ALS and has seen too many relatives succumb to the disease. She puts into words so well the horrible dilemma pALS and their families face: when one’s diaphragm and intercostal muscles no longer work and breathing is impossible on one’s own, should one have a permanent tracheostomy (often with…
Day 9 of ALS Awareness Month: Of those afflicted with the disease, 60% are men, and 40% are women. #NotJustAnOldMansDisease
Day 8 of ALS Awareness Month: ALS is also MND in UK (motor neuron disease), Maladie de Charcot in France, & Lou Gehrig’s disease.
Day 7 of ALS Awareness Month: It’s not as rare as you think. 1 out of every 400 men & 1 out of every 800 women die from ALS.
Day 6 of ALS Awareness Month: The FDA just approved Radicava/Edaravone, the 2nd ALS drug ever approved! Today is a good day. For more information on Radicava, click here.
Day 5 of ALS Awareness Month: It’s not as rare as you think. Every 90 minutes someone dies from ALS & someone else is diagnosed.
Day 4 of ALS Awareness Month: To help raise awareness, Stephen appeared in a piece on the Lifetime Channel, aired this morning. That piece is online here.
Day 3 of ALS Awareness Month: Military veterans are twice as likely to get ALS, ACROSS ALL WARS. And the V.A. has designated ALS as a service-connected disability.
Day 2 of ALS Awareness Month. Fact: 30,000 people in the U.S. are living with ALS.