Loud Owl 8/30/2017: “What Keeps Me Fighting: Living with ALS”. Stephen Winthrop, a trustee on the National Board for the ALS Association, knows the adversity that come with this disease intimately. When muscle twitches began in his left arm at the beginning of the decade, Winthrop said that, “like most guys, I just ignored the twitching for a while. It wasn’t until November 2013 that I was actually diagnosed with ALS.”